Monday, September 23, 2013

CGM can save my life

I was able to have a continuous glucose monitor for a month in a half because a dear friend upgraded and gave me her old one with about 6 sensors left. The CGM checks your blood sugar levels every 5 minutes and creates a 24 hour graph showing you a general snap shot of what your blood is doing. My A1C was 9.4 after a month with the CGM my A1C went down to 8.8 I am on my way to my goal of 7. When Obama care passes It is my hope that I would then be eligible to receive a CGM.

Wednesday, August 28, 2013

Pills pills pills

Just met with My primary doctor and she said my blood is a bit low so iron pill but because of gastroperisis need a pill so iron won't cause constipation. Then wants to add a pill to protect my kidneys cause from diabetes high sugars. That is on top of neurotin for neuroapothy and prolisec from gastroperisis. I'm going to need a weekly pill box like a senior citizen :( well That's the way the ball bounces.

Sunday, June 2, 2013

Nba dribble for diabetes

Had a chance to represent the ADA at the NBA dribble for diabetes event at universal city walk.

Wednesday, May 8, 2013

Neuropothy study

So I am starting a year trial of a neuropothy treatment that has shown some improvement with he damage nerves in the lower extremities. All in the name of research to help find the cure for these diabetic related clmplications. We shall see how it goes as the study progresses.

Tuesday, March 12, 2013

Our efforts are working

Diabetes Caucus –as of Thursday March 7 th ,the following Members of Congress joined:

Karen Bass (CA-37)

Schneider (IL-10)

Kennedy (MA-4)

Schock (IL-18)

Tuesday, March 5, 2013

Call to congress training meeting

Staying at the infamous Omni shorham hotel for Ada call to congress. Training has begun delegates from across the us all in one room with one common cause. TO STOP DIABETES. no cuts for funding on prevention and research health programs. These programs help prevent cure and improve the lives of ALL people affected by diabetes.
Our asks 2.216 billion for national institutes of health national institute of diabetes and digestive and kidney disease. The pump was invented by this program.
86.3 for center for disease control and preventions division of diabetes translation. This has taken care of tracking numbers and raising awareness.
Every member of congress to join diabetes caucus.

Saturday, March 2, 2013

Juvenile Diabetes Research Foundation Health Symposium

It's amazing how powerful sharing your story can be. Your story can help save a life, help motivate, help make a transition easier or even make someone feel they are not alone. That is what happened today on our panel personal stories sprouting questions and shared information.

Tuesday, February 19, 2013

Research

I have participated in two research studies today related to type 1 study. One was to compare heart and neck plague buildup or lack in young adults with and without type 1 diabetes. I learned that I have a very small sign of plague buildup on my left side of my neck. I can fix that with getting my bad cholesterol down which slightly elevated. So these research studies help you the participant as well as science with prevention efforts.

Monday, February 18, 2013

Getting my A1C down

It's a hard battle but I'm slowly getting my blood sugars under control. I have an a1c of 9.3 it was 9.6 and last year it was 10.4
Praying to God for an a1c of 7 and once I reach it praying to maintain it.

Thursday, February 7, 2013

JDRF Health Symposium

Hope & Health Symposium

Saturday, March 2 at 9:00am to 4:00pm

Pasadena Conference Center

Photo of Hope & Health SymposiumJDRF LA is hosting an educational and networking conference in March for adults and children with T1D, their families, and the medical community as a way to increase knowledge, share best practices, and communicate with others in the field about the disease. This free event is an all-day informational symposium with multiple breakout sessions for individuals at all stages and ages.
**Parking will average $10/car. Boxed lunches will be provided.
Keynote Presentation Topics Include:
-Opening Remarks from KTLA’s Frank Buckley, TV Newscaster and father of a teenager with T1D
-A Vital Role of Advocacy at JDRF
-Improving Lives: Role of Research and Technology in the Treatment and Cure for T1D
-Everyday Life with Diabetes Panel
Adult Breakout Sessions Include:
-Type 1 Diabetes in the School Setting: Everything You Need to Know Before Your Child Goes to School
Bonnie Baswell, Educational Equities Office Supervisor, LAUSD
Robert Cuen, Attorney and Law Professor, LAUSD
-Diabetes 101: First Two Years with Type 1 Diabetes
Jyotsna Keni, Pediatric Endocrinology, Kaiser
-Transition from Pediatric to Adult Care
-Diabetes 101: En Espanol
Ruth Pupo, CDE, White Memorial Hospital
-Yes, You Can Manage Your Diabetes
Mary Halvorson, CDE, RN, MSN, Children's Hospital Los Angeles
Kids’ Zone Sessions: Sessions for children will run simultaneously with the adult sessions and will include age-appropriate diabetes and nutrition education, arts & crafts, and group games.
Vendor Exhibit Hall: Not only will you be able to learn in a lectures setting, but you will also have the opportunity to view and interact with local diabetes management supply representatives throughout the day. You’ll be able to learn about the latest products, get samples, and enter into raffles.

Tuesday, January 8, 2013

Embryonic Stem Cell Research


Dear Advocacy Leaders,
There is some important and wonderful news to share regarding the future of federal funding for embryonic stem cell research. Earlier today, the U.S. Supreme Court refused to hear the Sherley v. Sebelius lawsuit, which challenged the Obama Administration’s 2009 guidelines on federal funding of embryonic stem cell research.  The Supreme Court’s ruling in response to an appeal by the plaintiffs in the case, Dr. James Sherley and Dr. Theresa Deisher, was issued without comment or dissent and allows federal funding of these studies to continue. Today’s ruling also effectively brings the lawsuit, originally filed in 2010, to an end.  Because of the Supreme Court’s ruling, scientists can now proceed with studies knowing that the Obama Administration’s policy on federal funding for embryonic stem cell research will remain in place. 
This is a great victory for researchers and for the 105 million adults and children with, or at risk for, diabetes, because of the great promise that stem cell research, especially human embryonic stem cell research, holds for fostering improved care for people with diabetes and ultimately a cure for this disease. The American Diabetes Association joined with other organizations in opposition to the original lawsuit, including participating in a friend of the court brief in support of continuing embryonic stem cell research and we actively monitored developments in the court battle.
Call To Congress click on this link for more information

Wednesday, January 2, 2013

Special Diabetes Program Passed

Special Diabetes Program reauthorization passed both the Senate and the House and is on its way to the President’s desk to be signed into law! 

Your meetings with Members of Congress, phone calls and emails kept this alive and got us to the finish line! The reauthorization renews the Special Diabetes Program for one year at the current funding level of $150 million for the type 1 diabetes program and $150 million for the program focused on diabetes in Native American and Alaska Native communities.

 This is a major victory for people affected by diabetes. Our nation’s most effective federal initiative to Stop Diabetes® and its complications, the Special Diabetes Program has made real advances in diabetes research, treatment and prevention efforts, bringing us closer to a cure for diabetes.

 Because of your help, this renewal will allow for: 
 -The development of new drug therapies and effective treatments capable of stopping diabetes complications; 
-Progress in identifying environmental triggers for type 1 diabetes;
- Prevention, wellness and education programs for communities that are most at-risk of developing type 2 diabetes;
- and Continued research for a cure. With nearly 26 million Americans living with diabetes and 79 million more with prediabetes, curing diabetes and preventing its complications is critical, and this is a huge step in the right direction! This victory couldn’t have happened without you.